Lack of sleep Quote by Atul Gawande
““One day, however, they had an experience that revealed just how fragile their life had become. Bella developed a cold, causing fluid to accumulate in her ears. An eardrum ruptured. And with that she became totally deaf. That was all it took to sever the thread between them. With her blindness and memory problems, the hearing loss made it impossible for Felix to achieve any kind of communication with her. He tried drawing out letters on the palm of her hand but she couldn’t make them out. Even the simplest matters—getting her dressed, for instance—became a nightmare of confusion for her. Without sensory grounding, she lost track of time of day. She grew severely confused, at times delusional and agitated. He couldn’t take care of her. He became exhausted from stress and lack of sleep. He didn’t know what to do, but there was a system for such situations. The people at the residence proposed transferring her to a skilled nursing unit—a nursing home floor. He couldn’t bear the thought of it. No, he said. She needed to stay at home with him. Before the issue was forced, they got a reprieve. Two and a half weeks into the ordeal, Bella’s right eardrum mended and, although the hearing in her left ear was lost permanently, the hearing in her right ear came back. “Our communication is more difficult,” Felix said. “But at least it is possible.””
About This Quote
Source Essay: Being Mortal, 2012
A caregiver struggles with a loved one's sensory loss, highlighting communication challenges and emotional strain.
In simple terms: Loss of senses strains relationships and care.
Seek adaptive communication methods.
Themes
Mood
Type
When to use this quote
- home care
- medical support
- assistive technology
- family dynamics
Key Concepts
Questions to Reflect On
- What tools aid deaf communication?
- How can caregivers protect their wellbeing?
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