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Cfs Quote by Ellen Wright Clayton

“To replace ME/CFS, the [Institute of Medicine] committee proposes the name systemic exertion intolerance disease, or SEID. This name captures a central characteristic of the disease: the fact that exertion of any sort— physical, cognitive, or emotional—can adversely affect patients in many organ…” quote by Ellen Wright Clayton
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““To replace ME/CFS, the [Institute of Medicine] committee proposes the name systemic exertion intolerance disease, or SEID. This name captures a central characteristic of the disease: the fact that exertion of any sort— physical, cognitive, or emotional—can adversely affect patients in many organ systems and in many aspects of their lives.””

Ellen Wright Clayton

About This Quote

Source Report: Institute of Medicine recommendations, 2015

Renaming ME/CFS to systemic exertion intolerance disease emphasizes that any type of exertion can worsen symptoms across many body systems.

In simple terms: The new name highlights that all exertion can worsen the illness.

Key Takeaway

Use the name to convey the disease’s core feature.

Themes

healthcare diagnosis patient advocacy

Mood

empathetic informative

Type

medical advocacy

When to use this quote

  • clinical practice
  • patient education
  • research funding

Key Concepts

chronic illness symptom management medical terminology

Questions to Reflect On

  • How will the new name affect patient care?
  • What challenges arise in changing medical language?
A Different Perspective

Adoption of new terminology may face resistance.

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