“The single biggest factor determining recovery and remission from Myalgic Encephalomyelitis (M.E.) at this point is undoubtedly appropriate rest in the early… — Jodi Bassett Copy Share Image
“There are many reports that suggest a biomedical basis for post-exertional malaise. This is inconsistent with the assumption that there is pathological… — Sten Helmfrid Copy Share Image
“To replace ME/CFS, the [Institute of Medicine] committee proposes the name systemic exertion intolerance disease, or SEID. This name captures a central… — Ellen Wright Clayton Copy Share Image
“Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling condition characterized by severe unexplained fatigue and a mixed profile of symptoms such as… — Leonard A. Jason Copy Share Image
“All I ask of all my friends is that they understand this is truly a devastating neurological illness and not just about… — Tracey Browett Copy Share Image
“Over the years, I have cared for loved ones with advanced Alzheimer, late stage cardiovascular and renal disease and Stage 4 cancer.… — Mary Dimmock Copy Share Image
“ME/CFS has a greater negative impact on functional status and well-being than other chronic diseases, e.g., cancer or lung diseases[8], and is… — Frank Twisk Copy Share Image
“Many people confuse “chronic fatigue” (which is a symptom of many chronic conditions, including rheumatoid arthritis, fibromyalgia, or lupus) or “general tiredness”… — Valerie free Copy Share Image
“Malaise” is a general body discomfort or weakness, often marking the onset of an of infection/flu-like illness or other disease. Fatigue and… — Alison C. Bested Copy Share Image
“To differentiate between symptoms of depression and anxiety secondary to ME/CFS and psychiatric disorders, ask the patient what they will do the… — Alison C. Bested Copy Share Image
“Finally, individuals with severe pathological fatigue might experience states that are very different from what a healthy individual experiences when fatigued.” — Leonard A. Jason Copy Share Image
“I have seen three beautiful young girls in their 30's within the last few years pass away due to this illness, who… — Tracey Browett Copy Share Image
“I am so fed up of having to explain to people that Danny is not just tired; if only that were the… — Sonya Chowdhury Copy Share Image
“The label ‘Chronic Fatigue Syndrome’ was first proposed by Holmes et al. (1988) of the Centers for Disease Control (CDC). This name… — Megan A. Arroll Copy Share Image
“Severe, persisting fatigue is a prominent symptom of Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), but individuals with this illness frequently report the occurrence… — Leonard A. Jason Copy Share Image
“Everything I thought I understood about disease research, drug development, and the delivery of clinical care has been turned on its head.… — Mary Dimmock Copy Share Image
“the disabling fatigue experienced by individuals with ME/CFS differs from that associated with other illnesses or everyday activity” — Leonard A. Jason Copy Share Image
“The diagnostic criteria for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) define two distinct clinical entities. Cognitive impairment and post-exertional “malaise”… — Frank Twisk Copy Share Image
“How do I deal with my own frustration and outrage at the injustice of what has happened to my son and all… — Mary Dimmock Copy Share Image
“individuals with ME/CFS experience different types of fatigue than what are reported in the general populations” — Leonard A. Jason Copy Share Image
“This is an example of pacing when shopping. Break shopping into multiple steps: 1) rest at home before driving the car to… — Alison C. Bested Copy Share Image
“The people in whom CFS often takes a hold are those driven, workaholic, goal driven, perfectionist, 'never say die' characters. This is… — Sarah Myhill Copy Share Image
“we see cardiac diastolic dysfunction in almost every case... there are patients whose diastolic dysfunction is so low/poor that they would fit… — Paul Cheney Copy Share Image
“I wake up every morning, thinking that this can't really be happening. What parallel universe have I entered?” — Mary Dimmock Copy Share Image
“Historically in the literature CBT [Cognitive Behavioral Therapy] was inappropriately touted as a cure for patients with ME/CFS if they changed their… — Alison C. Bested Copy Share Image
