“Finally, individuals with severe pathological fatigue might experience states that are very different from what a healthy individual experiences when fatigued.” — Leonard A. Jason Copy Share Image
“I’m really tired”, you come to understand, is meaningless, giving the impression all will be well with a good rest and that… — Frances Ryan Copy Share Image
“I wake up every morning, thinking that this can't really be happening. What parallel universe have I entered?” — Mary Dimmock Copy Share Image
“individuals with ME/CFS experience different types of fatigue than what are reported in the general populations” — Leonard A. Jason Copy Share Image
“the disabling fatigue experienced by individuals with ME/CFS differs from that associated with other illnesses or everyday activity” — Leonard A. Jason Copy Share Image
“The whole idea that you can take a disease like this and exercise your way to health is foolishness. It is insane.” — Paul Cheney Copy Share Image
“It [ME] is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.” — Daniel L. Peterson Copy Share Image
“How do I deal with my own frustration and outrage at the injustice of what has happened to my son and all… — Mary Dimmock Copy Share Image
“I have seen three beautiful young girls in their 30's within the last few years pass away due to this illness, who… — Tracey Browett Copy Share Image
“I take no pleasure in, and set no store by, the suggestion that Professor Wessely effectively hijacked the WHO logo to give… — Frederick R.P. Curzon Copy Share Image
“The pathophysiological consequences of ME/CFS are multi-systemic and may include: immune and neuroendocrine abnormalities; brain dysfunction and neurocognitive defects; cardiovascular and autonomic… — Anthony Komaroff Copy Share Image
“For the last 48 years, myalgic encephalomyelitis (ME) has been formally classified by the World Health Organisation as a neurological disorder but… — Margaret Williams Copy Share Image
“Severe, persisting fatigue is a prominent symptom of Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), but individuals with this illness frequently report the occurrence… — Leonard A. Jason Copy Share Image
“I hope you are not saying that (ME)CFS patients are not as ill as HIV patients. I split my clinical time between… — Nancy G. Klimas Copy Share Image
“In July and August 2011 Simon Wessely ran a media campaign with the BBC and the broadsheets, successfully vilifying patients who had… — Horace Reid Copy Share Image
“The most important limitation of [clinical] guidelines is that the recommendations may be wrong... Practices that are sub-optimal from the patient’s perspective… — Steven H. Woolf Copy Share Image
“ME/CFS has a greater negative impact on functional status and well-being than other chronic diseases, e.g., cancer or lung diseases[8], and is… — Frank Twisk Copy Share Image
“The Wessely School rejects the significant body of biomedical evidence demonstrating that chronic “fatigue” or “tiredness” is not the same as the… — Malcolm hopper Copy Share Image
“Many people confuse “chronic fatigue” (which is a symptom of many chronic conditions, including rheumatoid arthritis, fibromyalgia, or lupus) or “general tiredness”… — Valerie free Copy Share Image
“The Medical Research Council’s PACE Trial of behavioural interventions for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (CFS/ME) attracted considerable opposition from the… — Malcolm hopper Copy Share Image
“Patients who develop ME/CFS often lose the natural antidepressant effect of exercise, feeling worse after exercise rather than better. Patients may have… — Bruce M. Carruthers Copy Share Image
“Imagine you’re diagnosed with epilepsy: what would you think if you weren’t referred to a specialist but taken to a psychiatrist to… — Tanya Marlow Copy Share Image
“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have… — Tanya Marlow Copy Share Image
“What about the claim, by the PACE trial, that Graded Exercise Therapy and CBT can treat ME? This is a trial where… — Tanya Marlow Copy Share Image
“Many doctors (and medical students) display uncertainty about whether or not CFS/ME is real…Patients with CFS/ME often experience suspicion by health professionals…The… — Charotte Blease Copy Share Image
“In general, fatigue is not as severe in depression as in ME/CFS. Joint and muscle pains, recurrent sore throats, tender lymph nodes,… — Bruce M. Carruthers Copy Share Image
“Several years ago I was lecturing in British Columbia. Dr [Simon] Wessely was speaking and he gave a thoroughly enjoyable lecture on… — Byron Hyde Copy Share Image
“Individuals are often stigmatized and told their illness isn’t real… People with [ME] CFS face an incredible burden just getting doctors to… — Barry E. Hurwitz Copy Share Image
“All I ask of all my friends is that they understand this is truly a devastating neurological illness and not just about… — Tracey Browett Copy Share Image
“It’s absolutely retrogressive to suggest [ME] CFS is in the heads of patients. I have seen patients commit suicide, or have been… — Peter Behan Copy Share Image
“This is an example of pacing when shopping. Break shopping into multiple steps: 1) rest at home before driving the car to… — Alison C. Bested Copy Share Image
“I am so fed up of having to explain to people that Danny is not just tired; if only that were the… — Sonya Chowdhury Copy Share Image
“The single biggest factor determining recovery and remission from Myalgic Encephalomyelitis (M.E.) at this point is undoubtedly appropriate rest in the early… — Jodi Bassett Copy Share Image
“The evidence of inflammation in people with ME/CFS is important because the incremental aerobic exercise recommended by the Wessely School and encapsulated… — Margaret Williams Copy Share Image
“Multiple allergies are perhaps the most obvious sign of immune system overreaction. Patients with CFIDS frequently have a past history of allergies,… — David S. Bell M. D Copy Share Image
“we see cardiac diastolic dysfunction in almost every case... there are patients whose diastolic dysfunction is so low/poor that they would fit… — Paul Cheney Copy Share Image
“people with ME/CFS do not have “fatigue as their main symptom”; they have post-extertional fatigability accompanied by malaise as their main symptom… — Margaret Williams Copy Share Image
“There are many reports that suggest a biomedical basis for post-exertional malaise. This is inconsistent with the assumption that there is pathological… — Sten Helmfrid Copy Share Image
“The diagnostic criteria for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) define two distinct clinical entities. Cognitive impairment and post-exertional “malaise”… — Frank Twisk Copy Share Image
“Please don't look at our scarlet A's and write us off. Look us in the eye, talk directly to us. Don't panic… — Lisa Genova Copy Share Image