“Imagine you’re diagnosed with epilepsy: what would you think if you weren’t referred to a specialist but taken to a psychiatrist to treat you for your ‘false illness beliefs’? This is what happens to Myalgic Encephalomyelitis (ME) patients in the… — Tanya Marlow Copy Share Image
“To be in a long-term state of limbo, not knowing the outcome or length of time waiting, is utterly, shatteringly exhausting.” — Tanya Marlow Copy Share Image
“In a period of extended waiting in life, it is all too easy to assume that something is wrong. We assume that 'something' is… — Tanya Marlow Copy Share Image
“What about the claim, by the PACE trial, that Graded Exercise Therapy and CBT can treat ME? This is a trial where you could enter moderately ill, get worse in the trial, and be declared ‘recovered’ at the end. Even the recent follow-up study conceded that, long-term, Graded Exercise and CBT are no better for ME than doing nothing. Investigative… — Tanya Marlow Copy Share
“Though Graded Exercise helps some, the ME Association reports 74 per cent of ME patients are harmed by the therapy, with some made permanently… — Tanya Marlow Copy Share Image
“To wait means you are constantly straddling two realities - the hoped-for outcome either happening, or not. Yes, or no. Yes, or no. You… — Tanya Marlow Copy Share Image
“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have a psychiatric disorder. Meanwhile, people are quietly dying of ME. ME sufferer Emily Collingridge died, aged 30; Victoria Webster died at just 18. People don’t die from ‘exercise phobia’. ME is not ‘lethargy’ and ‘aches and pains’, as… — Tanya Marlow Copy Share
“Imagine you’re diagnosed with epilepsy: what would you think if you weren’t referred to a specialist but taken to a psychiatrist to treat you… — Tanya Marlow Copy Share Image
