““I heard a compelling lecture by an African American pastor from the north side of Chicago. He opened his talk with numbers, counting up all of the hours that a God-fearing person in his parish has spent in church over the course of her life. It was a lot. Then he described what is talked about during those hours in church. It’s all about hope, he told us. For change, for a better future, for justice, for relief of suffering. And then he asked the predominantly white audience why we expected our African American patients to give up hope—for a cure, for another chance at life—at this most vulnerable point in their lives. This is a time, he said, when they need hope the most. If the doctor’s only concept of hope and miracles is the cure of disease, then there truly is nothing more to talk about with a family wanting everything done in the name of God. But guided by Betty Clark, the pastor on our palliative care team, I have found other ways of transmitting hope to families looking for a miracle. The miracle of time at home, of pain management, of improved quality of life. These are all concepts I have seen families embrace in place of survival—the only concept of hope previously imagined. I have also found it helpful to open up the question of God’s will. Once, a religious family explained to me that they didn’t want to play God by withdrawing the breathing tube from their dying loved one. I asked them whether another interpretation might be that they were playing God by keeping her alive when her body was actively dying. Mightn’t this be God demonstrating that it was her time to die? And were we, in our hubris, thwarting God’s will? Many families agreed with my suggestion that almighty God doesn’t need help from mere mortals. If He wants to heal a body, He can do it on his own.””
