Access Quote by Francis Collins
“A cardinal principle that we must not stray from - no exceptions - is that your genetic information is your business in terms of who sees it. Nobody should be gaining access to that information without your explicit permission, and nobody should be requiring you to take a genetic test unless you decide that that's what you want to do.”
About This Quote
Source Interview: National Institutes of Health, 2018, Genomics Ethics
Genetic data is personal; consent is essential; no one should force testing.
In simple terms: Your DNA belongs to you; you control its use.
Key Takeaway
Protect genetic privacy.
Themes
ethics
privacy
healthcare
Mood
cautious
ethical
Type
ethical
informative
When to use this quote
- medical research
- insurance underwriting
- employment screening
Key Concepts
informed consent
data ownership
genomic testing
Questions to Reflect On
- What safeguards ensure consent is truly informed?
- How to handle emergencies needing genetic data?
A Different Perspective
Balancing research benefits with individual rights is complex.
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