“individuals with ME/CFS experience different types of fatigue than what are reported in the general populations” — Leonard A. Jason Copy Share Image
“I wake up every morning, thinking that this can't really be happening. What parallel universe have I entered?” — Mary Dimmock Copy Share Image
“The whole idea that you can take a disease like this and exercise your way to health is foolishness. It is insane.” — Paul Cheney Copy Share Image
“It [ME] is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.” — Daniel L. Peterson Copy Share Image
“It’s absolutely retrogressive to suggest [ME] CFS is in the heads of patients. I have seen patients commit suicide, or have been… — Peter Behan Copy Share Image
“the disabling fatigue experienced by individuals with ME/CFS differs from that associated with other illnesses or everyday activity” — Leonard A. Jason Copy Share Image
“I’m really tired”, you come to understand, is meaningless, giving the impression all will be well with a good rest and that… — Frances Ryan Copy Share Image
“I have no problem with not understanding the exact mechanism of the symptoms of CFS…I do have a problem with the lack… — David S. Bell Copy Share Image
“Finally, individuals with severe pathological fatigue might experience states that are very different from what a healthy individual experiences when fatigued.” — Leonard A. Jason Copy Share Image
“I hope you are not saying that (ME)CFS patients are not as ill as HIV patients. I split my clinical time between… — Nancy G. Klimas Copy Share Image
“The finding that ME and CFS group had more functional limitations and more serious symptoms than those with MS [multiple sclerosis] provides… — Leonard A. Jason Copy Share Image
“Individuals are often stigmatized and told their illness isn’t real… People with [ME] CFS face an incredible burden just getting doctors to… — Barry E. Hurwitz Copy Share Image
“This is an example of pacing when shopping. Break shopping into multiple steps: 1) rest at home before driving the car to… — Alison C. Bested Copy Share Image
“All I ask of all my friends is that they understand this is truly a devastating neurological illness and not just about… — Tracey Browett Copy Share Image
“ME/CFS is a complex condition that affects every organ system in the body. There is evidence of inflammation at the cellular and… — Alison C. Bested Copy Share Image
“The most important limitation of [clinical] guidelines is that the recommendations may be wrong... Practices that are sub-optimal from the patient’s perspective… — Steven H. Woolf Copy Share Image
“The evidence of inflammation in people with ME/CFS is important because the incremental aerobic exercise recommended by the Wessely School and encapsulated… — Margaret Williams Copy Share Image
“The single biggest factor determining recovery and remission from Myalgic Encephalomyelitis (M.E.) at this point is undoubtedly appropriate rest in the early… — Jodi Bassett Copy Share Image
“Because doctors can’t name the illness, everyone—the patient's family, friends, health insurance, and in many cases the patient—comes to think of the… — Joseph Dumit Copy Share Image
“I am so fed up of having to explain to people that Danny is not just tired; if only that were the… — Sonya Chowdhury Copy Share Image
“Imagine you’re diagnosed with epilepsy: what would you think if you weren’t referred to a specialist but taken to a psychiatrist to… — Tanya Marlow Copy Share Image
“Patients who develop ME/CFS often lose the natural antidepressant effect of exercise, feeling worse after exercise rather than better. Patients may have… — Bruce M. Carruthers Copy Share Image
“It must be noted that there is no proof that it is justified to apply the label somatisation to such conditions as… — Per Dalén Copy Share Image
“(The blood vessels) must be constricted so tight in the brain that little blood gets through. Perhaps it is one of the… — David S. Bell Copy Share Image
“Many people confuse “chronic fatigue” (which is a symptom of many chronic conditions, including rheumatoid arthritis, fibromyalgia, or lupus) or “general tiredness”… — Valerie free Copy Share Image
“The Wessely School rejects the significant body of biomedical evidence demonstrating that chronic “fatigue” or “tiredness” is not the same as the… — Malcolm hopper Copy Share Image
“ME/CFS has a greater negative impact on functional status and well-being than other chronic diseases, e.g., cancer or lung diseases[8], and is… — Frank Twisk Copy Share Image
“The Medical Research Council’s PACE Trial of behavioural interventions for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (CFS/ME) attracted considerable opposition from the… — Malcolm hopper Copy Share Image
“In general, fatigue is not as severe in depression as in ME/CFS. Joint and muscle pains, recurrent sore throats, tender lymph nodes,… — Bruce M. Carruthers Copy Share Image
“Several years ago I was lecturing in British Columbia. Dr [Simon] Wessely was speaking and he gave a thoroughly enjoyable lecture on… — Byron Hyde Copy Share Image
“How do I deal with my own frustration and outrage at the injustice of what has happened to my son and all… — Mary Dimmock Copy Share Image
“Luckily, we are seeing less and less post-exertional malaise, the symptom that stops Danny’s body and brain recovering properly after expending any… — Sonya Chowdhury Copy Share Image
“No matter how hopeless you feel, strive to find the one thing that makes you feel alive and pull yourself to the… — Tammy-Louise Wilkins Copy Share Image
“M.E. affects children, families and adults in so many different ways and you cannot make assumptions or judgements based just on a… — Sonya Chowdhury Copy Share Image
“people with ME/CFS do not have “fatigue as their main symptom”; they have post-extertional fatigability accompanied by malaise as their main symptom… — Margaret Williams Copy Share Image
“For 13 years now I have suffered. I have lost my job that I loved, my financial independence, my social life, my… — Tracey Browett Copy Share Image
“For the last 48 years, myalgic encephalomyelitis (ME) has been formally classified by the World Health Organisation as a neurological disorder but… — Margaret Williams Copy Share Image
“The pathophysiological consequences of ME/CFS are multi-systemic and may include: immune and neuroendocrine abnormalities; brain dysfunction and neurocognitive defects; cardiovascular and autonomic… — Anthony Komaroff Copy Share Image
“I take no pleasure in, and set no store by, the suggestion that Professor Wessely effectively hijacked the WHO logo to give… — Frederick R.P. Curzon Copy Share Image