“There are many reports that suggest a biomedical basis for post-exertional malaise. This is inconsistent with the assumption that there is pathological… — Sten Helmfrid Copy Share Image
“The diagnostic criteria for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) define two distinct clinical entities. Cognitive impairment and post-exertional “malaise”… — Frank Twisk Copy Share Image
“CBT is a much publicised and debated psychotherapeutic intervention for ME/CFS….The premise that cognitive therapy (eg. changing ‘illness beliefs’) and graded activity… — Anthony Komaroff Copy Share Image
“Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling condition characterized by severe unexplained fatigue and a mixed profile of symptoms such as… — Leonard A. Jason Copy Share Image
“To replace ME/CFS, the [Institute of Medicine] committee proposes the name systemic exertion intolerance disease, or SEID. This name captures a central… — Ellen Wright Clayton Copy Share Image
“Malaise” is a general body discomfort or weakness, often marking the onset of an of infection/flu-like illness or other disease. Fatigue and… — Alison C. Bested Copy Share Image
“To differentiate between symptoms of depression and anxiety secondary to ME/CFS and psychiatric disorders, ask the patient what they will do the… — Alison C. Bested Copy Share Image
“The renaming of ME to Chronic Fatigue Syndrome (CFS) in 1988, giving misplaced emphasis to “fatigue”, trivializes the substantial disability of the… — Malcolm hopper Copy Share Image
“Imagine you’re diagnosed with epilepsy: what would you think if you weren’t referred to a specialist but taken to a psychiatrist to… — Tanya Marlow Copy Share Image
“There is rightful objection to the denial of appropriate investigations and to the nationwide implementation of behavioural modification as the sole management… — Malcolm hopper Copy Share Image
“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have… — Tanya Marlow Copy Share Image
“What about the claim, by the PACE trial, that Graded Exercise Therapy and CBT can treat ME? This is a trial where… — Tanya Marlow Copy Share Image
“ME has been classified as a neurological condition at least since 1968 (this should have been 1969)…however, for all these years, sufferers… — Countess of Mar Copy Share Image
“Everything I thought I understood about disease research, drug development, and the delivery of clinical care has been turned on its head.… — Mary Dimmock Copy Share Image
“Historically in the literature CBT [Cognitive Behavioral Therapy] was inappropriately touted as a cure for patients with ME/CFS if they changed their… — Alison C. Bested Copy Share Image
“The term “myalgic encephalomyelitis” (muscle pain, “myalgic”, with “encephalomyelitis” inflammation of the brain and spinal cord) was first included by the World… — Malcolm Hooper Copy Share Image
“Though Graded Exercise helps some, the ME Association reports 74 per cent of ME patients are harmed by the therapy, with some… — Tanya Marlow Copy Share Image
“The people in whom CFS often takes a hold are those driven, workaholic, goal driven, perfectionist, 'never say die' characters. This is… — Sarah Myhill Copy Share Image
“Over the years, I have cared for loved ones with advanced Alzheimer, late stage cardiovascular and renal disease and Stage 4 cancer.… — Mary Dimmock Copy Share Image
“The neurological/cognitive symptoms are more characteristically variable than constant and often have a distinct fatiguing component to them. Especially common are cognitive… — Bruce M. Carruthers Copy Share Image
“In summary, patients with CFS are not “deconditioned”. Neither their muscle strength nor their exercise capacity is different from that of other… — Garry C. Scroop Copy Share Image
“The label ‘Chronic Fatigue Syndrome’ was first proposed by Holmes et al. (1988) of the Centers for Disease Control (CDC). This name… — Megan A. Arroll Copy Share Image
“ME/CFS is not synonymous with depression or other psychiatric illnesses. The belief by some that they are the same has caused much… — Bruce M. Carruthers Copy Share Image
“Many doctors (and medical students) display uncertainty about whether or not CFS/ME is real…Patients with CFS/ME often experience suspicion by health professionals…The… — Charotte Blease Copy Share Image
“The finding that ME and CFS group had more functional limitations and more serious symptoms than those with MS [multiple sclerosis] provides… — Leonard A. Jason Copy Share Image
“Because doctors can’t name the illness, everyone—the patient's family, friends, health insurance, and in many cases the patient—comes to think of the… — Joseph Dumit Copy Share Image
“I have no problem with not understanding the exact mechanism of the symptoms of CFS…I do have a problem with the lack… — David S. Bell Copy Share Image
“For 13 years now I have suffered. I have lost my job that I loved, my financial independence, my social life, my… — Tracey Browett Copy Share Image
“(The blood vessels) must be constricted so tight in the brain that little blood gets through. Perhaps it is one of the… — David S. Bell Copy Share Image
“It is [Simon] Wessely’s often-unconcealed “derision” directed towards people with ME -- a disease from which people die and which appears on… — Michael Hanlon Copy Share Image
“Although myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are considered to be synonymous, the definitional criteria for ME and CFS define… — Frank Twisk Copy Share Image