“Individuals are often stigmatized and told their illness isn’t real… People with [ME] CFS face an incredible burden just getting doctors to… — Barry E. Hurwitz Copy Share Image
“How do I deal with my own frustration and outrage at the injustice of what has happened to my son and all… — Mary Dimmock Copy Share Image
“Luckily, we are seeing less and less post-exertional malaise, the symptom that stops Danny’s body and brain recovering properly after expending any… — Sonya Chowdhury Copy Share Image
“No matter how hopeless you feel, strive to find the one thing that makes you feel alive and pull yourself to the… — Tammy-Louise Wilkins Copy Share Image
“M.E. affects children, families and adults in so many different ways and you cannot make assumptions or judgements based just on a… — Sonya Chowdhury Copy Share Image
“It [ME] is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.” — Daniel L. Peterson Copy Share Image
“We can't escape from our problems, but we can learn to live with them in a way that is peaceful and joyful.” — Pema Chodron Copy Share Image
“the disabling fatigue experienced by individuals with ME/CFS differs from that associated with other illnesses or everyday activity” — Leonard A. Jason Copy Share Image
“Though Graded Exercise helps some, the ME Association reports 74 per cent of ME patients are harmed by the therapy, with some… — Tanya Marlow Copy Share Image
“The neurological/cognitive symptoms are more characteristically variable than constant and often have a distinct fatiguing component to them. Especially common are cognitive… — Bruce M. Carruthers Copy Share Image
“In summary, patients with CFS are not “deconditioned”. Neither their muscle strength nor their exercise capacity is different from that of other… — Garry C. Scroop Copy Share Image
“CBT is a much publicised and debated psychotherapeutic intervention for ME/CFS….The premise that cognitive therapy (eg. changing ‘illness beliefs’) and graded activity… — Anthony Komaroff Copy Share Image
“The diagnostic criteria for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) define two distinct clinical entities. Cognitive impairment and post-exertional “malaise”… — Frank Twisk Copy Share Image
“Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling condition characterized by severe unexplained fatigue and a mixed profile of symptoms such as… — Leonard A. Jason Copy Share Image
“Please don't look at our scarlet A's and write us off. Look us in the eye, talk directly to us. Don't panic… — Lisa Genova Copy Share Image
“we see cardiac diastolic dysfunction in almost every case... there are patients whose diastolic dysfunction is so low/poor that they would fit… — Paul Cheney Copy Share Image
“Over the years, I have cared for loved ones with advanced Alzheimer, late stage cardiovascular and renal disease and Stage 4 cancer.… — Mary Dimmock Copy Share Image
“The people in whom CFS often takes a hold are those driven, workaholic, goal driven, perfectionist, 'never say die' characters. This is… — Sarah Myhill Copy Share Image
“Historically in the literature CBT [Cognitive Behavioral Therapy] was inappropriately touted as a cure for patients with ME/CFS if they changed their… — Alison C. Bested Copy Share Image
“The renaming of ME to Chronic Fatigue Syndrome (CFS) in 1988, giving misplaced emphasis to “fatigue”, trivializes the substantial disability of the… — Malcolm hopper Copy Share Image
“When people with ME/CFS report symptoms of post-exertional malaise, those symptoms are independent of emotional distress, but when the general population report… — Leonard A. Jason Copy Share Image
“The term “myalgic encephalomyelitis” (muscle pain, “myalgic”, with “encephalomyelitis” inflammation of the brain and spinal cord) was first included by the World… — Malcolm Hooper Copy Share Image
“ME/CFS is not synonymous with depression or other psychiatric illnesses. The belief by some that they are the same has caused much… — Bruce M. Carruthers Copy Share Image
“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have… — Tanya Marlow Copy Share Image
“Many doctors (and medical students) display uncertainty about whether or not CFS/ME is real…Patients with CFS/ME often experience suspicion by health professionals…The… — Charotte Blease Copy Share Image
“In general, fatigue is not as severe in depression as in ME/CFS. Joint and muscle pains, recurrent sore throats, tender lymph nodes,… — Bruce M. Carruthers Copy Share Image
“The label ‘Chronic Fatigue Syndrome’ was first proposed by Holmes et al. (1988) of the Centers for Disease Control (CDC). This name… — Megan A. Arroll Copy Share Image
“Several years ago I was lecturing in British Columbia. Dr [Simon] Wessely was speaking and he gave a thoroughly enjoyable lecture on… — Byron Hyde Copy Share Image
“I wake up every morning, thinking that this can't really be happening. What parallel universe have I entered?” — Mary Dimmock Copy Share Image
“I’m really tired”, you come to understand, is meaningless, giving the impression all will be well with a good rest and that… — Frances Ryan Copy Share Image
“individuals with ME/CFS experience different types of fatigue than what are reported in the general populations” — Leonard A. Jason Copy Share Image
“I have no problem with not understanding the exact mechanism of the symptoms of CFS…I do have a problem with the lack… — David S. Bell Copy Share Image
“The whole idea that you can take a disease like this and exercise your way to health is foolishness. It is insane.” — Paul Cheney Copy Share Image
“Finally, individuals with severe pathological fatigue might experience states that are very different from what a healthy individual experiences when fatigued.” — Leonard A. Jason Copy Share Image
“The finding that ME and CFS group had more functional limitations and more serious symptoms than those with MS [multiple sclerosis] provides… — Leonard A. Jason Copy Share Image
“people with ME/CFS do not have “fatigue as their main symptom”; they have post-extertional fatigability accompanied by malaise as their main symptom… — Margaret Williams Copy Share Image
“There are many reports that suggest a biomedical basis for post-exertional malaise. This is inconsistent with the assumption that there is pathological… — Sten Helmfrid Copy Share Image
“Malaise” is a general body discomfort or weakness, often marking the onset of an of infection/flu-like illness or other disease. Fatigue and… — Alison C. Bested Copy Share Image
“For 13 years now I have suffered. I have lost my job that I loved, my financial independence, my social life, my… — Tracey Browett Copy Share Image
“To replace ME/CFS, the [Institute of Medicine] committee proposes the name systemic exertion intolerance disease, or SEID. This name captures a central… — Ellen Wright Clayton Copy Share Image
![“Individuals are often stigmatized and told their illness isn’t real… People with [ME] CFS face an incredible burden just getting doctors to take their symptoms seriously” quote by Barry E. Hurwitz](https://sms4smile.com/quotes/i/a8a/barry-e-hurwitz-222278_chronic-fatigue-synd_individuals-are-often-stigmatized-and-to_913193.jpg)
![“It [ME] is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.” quote by Daniel L. Peterson](https://sms4smile.com/quotes/i/9c4/daniel-l-peterson-230406_chronic-fatigue-synd_it-me-is-one-of-the-most-disabling-disea_1991371.jpg)
![“we see cardiac diastolic dysfunction in almost every case... there are patients whose diastolic dysfunction is so low/poor that they would fit well into a cardiac ward awaiting transplant... The whole idea that you can take a disease like this [M.E./Chronic Fatigue Syndrome] and exercise your way…” quote by Paul Cheney](https://sms4smile.com/quotes/i/0f6/paul-cheney-94576_cfs_we-see-cardiac-diastolic-dysfunction-in_1916304.jpg)
![“Historically in the literature CBT [Cognitive Behavioral Therapy] was inappropriately touted as a cure for patients with ME/CFS if they changed their “belief system”. ME/CFS is a physical illness and not a psychological illness, therefore CBT cannot cure ME/ CFS. What CBT can do is to help…” quote by Alison C. Bested](https://sms4smile.com/quotes/i/3ea/alison-c-bested-63335_books_historically-in-the-literature-cbt-cogni_2076792.jpg)
![“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have a psychiatric disorder. Meanwhile, people are quietly dying of ME. ME sufferer Emily Collingridge died, aged 30; Victoria Webster died at just 18. People don’t die…” quote by Tanya Marlow](https://sms4smile.com/quotes/i/05b/tanya-marlow-46119_aches-and-pains_with-a-strange-logic-rod-liddle-asserts_1467293.jpg)
![“Several years ago I was lecturing in British Columbia. Dr [Simon] Wessely was speaking and he gave a thoroughly enjoyable lecture on M.E. and CFS. He had the hundreds of staff physicians laughing themselves silly over the invented griefs of the M.E. and CFS patients who according to Dr Wessely had…” quote by Byron Hyde](https://sms4smile.com/quotes/i/5b1/byron-hyde-181868_british-columbia_several-years-ago-i-was-lecturing-in-bri_1382328.jpg)
![“The finding that ME and CFS group had more functional limitations and more serious symptoms than those with MS [multiple sclerosis] provides additional evidence to the seriousness of ME and CFS.” quote by Leonard A. Jason](https://sms4smile.com/quotes/i/025/leonard-a-jason-49563_chronic-fatigue-synd_the-finding-that-me-and-cfs-group-had-mo_3048194.jpg)
![“To replace ME/CFS, the [Institute of Medicine] committee proposes the name systemic exertion intolerance disease, or SEID. This name captures a central characteristic of the disease: the fact that exertion of any sort— physical, cognitive, or emotional—can adversely affect patients in many organ…” quote by Ellen Wright Clayton](https://sms4smile.com/quotes/i/7b1/ellen-wright-clayton-235558_cfs_to-replace-me-cfs-the-institute-of-medic_405286.jpg)