“Every EDS patient knows that one of the hardest parts of our day is the moment we open our eyes and waken… — Michael Bihovsky Copy Share Image
“Mental illness People assume you aren’t sick unless they see the sickness on your skin like scars forming a map of all… — Emm Roy Copy Share Image
“I had learned quickly that life doesn't always go the way I want it to, and that's okay. I still plod on.” — Sarah Todd Hammer Copy Share Image
“Invisible illnesses exist - within body and mind (you just don’t always see the patients taking their pills).” — Andy Carrington Copy Share Image
“It never occurred to me that somehow women did know about it. It just never occurred to me. Yes I am wearing… — whoopi goldberg Copy Share Image
“I am so fed up of having to explain to people that Danny is not just tired; if only that were the… — Sonya Chowdhury Copy Share Image
“I hope you are not saying that (ME)CFS patients are not as ill as HIV patients. I split my clinical time between… — Nancy G. Klimas Copy Share Image
“People who don't see you every day have a hard time understanding how on some days--good days--you can run three miles, but… — Jennifer Starzec Copy Share Image
“He said that my problem was that I was perfectly healthy and had the illusion that I would be able bodied forever.… — James C. Coyne Copy Share Image
“Self-stigma can be just a big a problem as the negative attitudes of others.” — Megan A. Arroll Copy Share Image
“When you have an invisible disease, your sickness isn’t your biggest problem. What you end up battling more than anything else, every… — Heidi Cullinan Copy Share Image
“Luckily, we are seeing less and less post-exertional malaise, the symptom that stops Danny’s body and brain recovering properly after expending any… — Sonya Chowdhury Copy Share Image
“We have a duty tonight. Everybody, and guys this for you as well because I know you know women. You have a… — Whoopi Goldberg Copy Share Image
“Dancing with a spinal cord injury is a challenge like no other, but I aspired to prove to myself that I could… — Sarah Todd Hammer Copy Share Image
“The weekend was a much-needed breath of fresh air; Monday always seemed to not only take that breath right back, but add… — Jennifer Starzec Copy Share Image
“It is a perfectly normal side-effect for someone to have depression because he cannot move or function in his job. That is… — Dominic Hubbard Copy Share Image
“I often wished that more people understood the invisible side of things. Even the people who seemed to understand, didn't really.” — Jennifer Starzec Copy Share Image
“Because doctors can’t name the illness, everyone—the patient's family, friends, health insurance, and in many cases the patient—comes to think of the… — Joseph Dumit Copy Share Image
“The video was still playing, although I didn't know why. It seemed as if the able-bodied dancers were mocking me.” — Sarah Todd Hammer Copy Share Image
“Every EDS patient knows that one of the hardest parts of our day is the moment we open our eyes and waken… — Michael Bihovsky Copy Share Image
“EDS is a scary and challenging diagnosis, but the consequences of not knowing are far greater than that of a correct diagnosis.… — Michael Bihovsky Copy Share Image
“Some days I survive by accident, not hope. The pain never stops—it just changes costume. And still, somewhere in the static, there’s… — Jonathan Harnisch Copy Share Image