“Because doctors can’t name the illness, everyone—the patient's family, friends, health insurance, and in many cases the patient—comes to think of the… — Joseph Dumit Copy Share Image
“This is an example of pacing when shopping. Break shopping into multiple steps: 1) rest at home before driving the car to… — Alison C. Bested Copy Share Image
“It’s absolutely retrogressive to suggest [ME] CFS is in the heads of patients. I have seen patients commit suicide, or have been… — Peter Behan Copy Share Image
“The most important limitation of [clinical] guidelines is that the recommendations may be wrong... Practices that are sub-optimal from the patient’s perspective… — Steven H. Woolf Copy Share Image
“All I ask of all my friends is that they understand this is truly a devastating neurological illness and not just about… — Tracey Browett Copy Share Image
“ME/CFS is a complex condition that affects every organ system in the body. There is evidence of inflammation at the cellular and… — Alison C. Bested Copy Share Image
“For 13 years now I have suffered. I have lost my job that I loved, my financial independence, my social life, my… — Tracey Browett Copy Share Image
“Malaise” is a general body discomfort or weakness, often marking the onset of an of infection/flu-like illness or other disease. Fatigue and… — Alison C. Bested Copy Share Image
“Patients who develop ME/CFS often lose the natural antidepressant effect of exercise, feeling worse after exercise rather than better. Patients may have… — Bruce M. Carruthers Copy Share Image
“Everything I thought I understood about disease research, drug development, and the delivery of clinical care has been turned on its head.… — Mary Dimmock Copy Share Image
“To differentiate between symptoms of depression and anxiety secondary to ME/CFS and psychiatric disorders, ask the patient what they will do the… — Alison C. Bested Copy Share Image
“ME has been classified as a neurological condition at least since 1968 (this should have been 1969)…however, for all these years, sufferers… — Countess of Mar Copy Share Image
“What about the claim, by the PACE trial, that Graded Exercise Therapy and CBT can treat ME? This is a trial where… — Tanya Marlow Copy Share Image
“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have… — Tanya Marlow Copy Share Image
“There is rightful objection to the denial of appropriate investigations and to the nationwide implementation of behavioural modification as the sole management… — Malcolm hopper Copy Share Image
“When people with ME/CFS report symptoms of post-exertional malaise, those symptoms are independent of emotional distress, but when the general population report… — Leonard A. Jason Copy Share Image
“To replace ME/CFS, the [Institute of Medicine] committee proposes the name systemic exertion intolerance disease, or SEID. This name captures a central… — Ellen Wright Clayton Copy Share Image
“Please don't look at our scarlet A's and write us off. Look us in the eye, talk directly to us. Don't panic… — Lisa Genova Copy Share Image
“Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling condition characterized by severe unexplained fatigue and a mixed profile of symptoms such as… — Leonard A. Jason Copy Share Image
“CBT is a much publicised and debated psychotherapeutic intervention for ME/CFS….The premise that cognitive therapy (eg. changing ‘illness beliefs’) and graded activity… — Anthony Komaroff Copy Share Image
“The diagnostic criteria for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) define two distinct clinical entities. Cognitive impairment and post-exertional “malaise”… — Frank Twisk Copy Share Image
“There are many reports that suggest a biomedical basis for post-exertional malaise. This is inconsistent with the assumption that there is pathological… — Sten Helmfrid Copy Share Image
“people with ME/CFS do not have “fatigue as their main symptom”; they have post-extertional fatigability accompanied by malaise as their main symptom… — Margaret Williams Copy Share Image
“we see cardiac diastolic dysfunction in almost every case... there are patients whose diastolic dysfunction is so low/poor that they would fit… — Paul Cheney Copy Share Image
“In summary, patients with CFS are not “deconditioned”. Neither their muscle strength nor their exercise capacity is different from that of other… — Garry C. Scroop Copy Share Image
“The neurological/cognitive symptoms are more characteristically variable than constant and often have a distinct fatiguing component to them. Especially common are cognitive… — Bruce M. Carruthers Copy Share Image
“Though Graded Exercise helps some, the ME Association reports 74 per cent of ME patients are harmed by the therapy, with some… — Tanya Marlow Copy Share Image
“ME/CFS is not synonymous with depression or other psychiatric illnesses. The belief by some that they are the same has caused much… — Bruce M. Carruthers Copy Share Image
“The term “myalgic encephalomyelitis” (muscle pain, “myalgic”, with “encephalomyelitis” inflammation of the brain and spinal cord) was first included by the World… — Malcolm Hooper Copy Share Image
“The people in whom CFS often takes a hold are those driven, workaholic, goal driven, perfectionist, 'never say die' characters. This is… — Sarah Myhill Copy Share Image
“Over the years, I have cared for loved ones with advanced Alzheimer, late stage cardiovascular and renal disease and Stage 4 cancer.… — Mary Dimmock Copy Share Image
“The renaming of ME to Chronic Fatigue Syndrome (CFS) in 1988, giving misplaced emphasis to “fatigue”, trivializes the substantial disability of the… — Malcolm hopper Copy Share Image
“Historically in the literature CBT [Cognitive Behavioral Therapy] was inappropriately touted as a cure for patients with ME/CFS if they changed their… — Alison C. Bested Copy Share Image
![“It’s absolutely retrogressive to suggest [ME] CFS is in the heads of patients. I have seen patients commit suicide, or have been otherwise destroyed, because some professor has diagnosed them as having a psychiatric illness.” quote by Peter Behan](https://sms4smile.com/q/img-quotes/1b2/peter-behan-269225_chronic-fatigue-synd_it-s-absolutely-retrogressive-to-suggest_1250466.jpg)
![“The most important limitation of [clinical] guidelines is that the recommendations may be wrong... Practices that are sub-optimal from the patient’s perspective may be recommended to help control costs, serve societal needs, or protect special interests (those of doctors…or politicians, for…” quote by Steven H. Woolf](https://sms4smile.com/q/img-quotes/01c/steven-h-woolf-280034_cfs_the-most-important-limitation-of-clinica_1464808.jpg)
![“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have a psychiatric disorder. Meanwhile, people are quietly dying of ME. ME sufferer Emily Collingridge died, aged 30; Victoria Webster died at just 18. People don’t die…” quote by Tanya Marlow](https://sms4smile.com/q/img-quotes/05b/tanya-marlow-46119_aches-and-pains_with-a-strange-logic-rod-liddle-asserts_1467293.jpg)
![“To replace ME/CFS, the [Institute of Medicine] committee proposes the name systemic exertion intolerance disease, or SEID. This name captures a central characteristic of the disease: the fact that exertion of any sort— physical, cognitive, or emotional—can adversely affect patients in many organ…” quote by Ellen Wright Clayton](https://sms4smile.com/q/img-quotes/7b1/ellen-wright-clayton-235558_cfs_to-replace-me-cfs-the-institute-of-medic_405286.jpg)
![“we see cardiac diastolic dysfunction in almost every case... there are patients whose diastolic dysfunction is so low/poor that they would fit well into a cardiac ward awaiting transplant... The whole idea that you can take a disease like this [M.E./Chronic Fatigue Syndrome] and exercise your way…” quote by Paul Cheney](https://sms4smile.com/q/img-quotes/0f6/paul-cheney-94576_cfs_we-see-cardiac-diastolic-dysfunction-in_1916304.jpg)
![“Historically in the literature CBT [Cognitive Behavioral Therapy] was inappropriately touted as a cure for patients with ME/CFS if they changed their “belief system”. ME/CFS is a physical illness and not a psychological illness, therefore CBT cannot cure ME/ CFS. What CBT can do is to help…” quote by Alison C. Bested](https://sms4smile.com/q/img-quotes/3ea/alison-c-bested-63335_books_historically-in-the-literature-cbt-cogni_2076792.jpg)